http://talk.stroudcup.org/ Cancer of Unknown Primary en-US Thu, 23 Feb 2012 02:05:42 +0000 http://bbpress.org/?v=1.0.2 q http://talk.stroudcup.org/search.php http://talk.stroudcup.org/topic/share-your-story#post-2 Tue, 13 Apr 2010 07:47:29 +0000 Tara 2@http://talk.stroudcup.org/ <p>Have you or someone you love been diagnosed with Cancer of Unknown Primary? Share you story here. </p> http://talk.stroudcup.org/topic/international-cup-alliance#post-199 Tue, 12 Apr 2011 18:36:28 +0000 Tara 199@http://talk.stroudcup.org/ <p>We have added this new section as we want to (a) build up shared knowledge about how CUP is managed in different countries and (b) to establish a point of contact so that people in a country where we have an identified name can ask questions about the particular health systems etc. For example Jane in Australia and John in the UK are our first points of contact and will hopefully be putting in their contact details in subsequent posts.</p> <p>If you would like to be the point of contact in another country please make contact. The sort of things we are interested in: are there CUP-specific specialists/clinics in your country; how are patients supported; what information is provided; what is usual practice in relation to new diagnostic tests/research such as genetic profiling; how can we push for a better deal for CUP patients in our respective countries; how can we join together to make this cancer more visible; how can we start making more noise to get funding for research; what is happening research-wise in the various countries; what new research is coming out which may be of value to people with CUP; where are there any conferences to raise the CUP voice; how can we be a vehicle to disseminate new information, how can we be supportive to one another?</p> <p>Please provide any information you have to share regarding your specific country. </p> http://talk.stroudcup.org/topic/treatments#post-18 Wed, 11 Aug 2010 08:25:37 +0000 Tara 18@http://talk.stroudcup.org/ <p>Share your treatments plans here. Is it working? Do you have side effects? Have a question about a certain kind of treatment? </p> http://talk.stroudcup.org/topic/have-a-suggestion-for-the-stroud-foundation#post-4 Tue, 13 Apr 2010 07:53:38 +0000 Tara 4@http://talk.stroudcup.org/ <p>Post your suggestions here. </p> http://talk.stroudcup.org/topic/support-for-caregivers#post-5 Tue, 13 Apr 2010 07:56:36 +0000 Tara 5@http://talk.stroudcup.org/ <p>Being a caregiver is not always easy, and you are not alone. Share here with other caregivers who may understand what you are going through. </p> http://talk.stroudcup.org/topic/oncologists-and-medical-centers#post-3 Tue, 13 Apr 2010 07:52:04 +0000 Tara 3@http://talk.stroudcup.org/ <p>Where are you currently being treated? Who is your oncologist? Share here so that others may be able to find someone they can trust in their area. </p>